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European Patients Academy

Tanya Collin-Histed

Tanya Collin-Histed became involved in the Gaucher world in 1996 when her daughter Maddie was diagnosed with Type III Gaucher disease. A year later she became a volunteer for the Gauchers Association and started to support patients and their families with Type II and III Gaucher Disease. Today she is the CEO of the UK Gauchers Association (a position she has held for 10 years) and the CEO of the European Gaucher Alliance.