EUPATI-UK network event sparks great interest and discussion
Over 60 people representing key stakeholders in patient and public involvement in UK health attended our national liaison team’s first network event hosted by the Dean of Leeds University. A full program of speakers raised the profile of the project on a country level and sparked discussion on how the UK can gain from EUPATI. The goal of this first network conference on 6 March 2014 was to provide an overview of the European Patients Academy and our goals. In addition, by bringing together key stakeholders in the UK interested in patient and public involvement in health, we emphasised what can be gained from EUPATI and showed how effective partnerships can be fostered.
Timing was perfect as attendees were able to learn more about the Expert Patient training course and application process which had opened the day previous, but also invited to shape the draft glossary of terms drawn from content developed for the course.
The event was reported throughout the day on social media with headline statements being shared, generating a large virtual following on twitter!
An important factor was the opportunity for people to engage with the European Patients Academy and network to discuss similar experiences.
Slide presentations from the event are available below with video recordings to be uploaded soon. A report on this event will be provided at the NLT workshop on April 3 in Warsaw.
Web streams will become available of some presentations! Please click on each presentation below to see the slides, or on the “Slideshare” logo to view them in larger size.
|Introduction to EUPATI UK
|EUPATI – EU: An overview
|Brief overview of Patient involvement in medicines development – beliefs, attitudes and knowledge of different stakeholders
Bella Starling, Co-Academic Lead of EUPATI-UK
Suzanne Parsons, EUPATI Work Package 3 Project Manager
|Bringing the patients’ voice into clinical research – working with industry and academia to deliver medical research and patient benefits
|INVOLVE perspectives on learning and development and the importance of public involvement for patients and the NH
|Patient’s at the centre of Health Research – Patient, Carer and Public Involvement In NICE Decision-making
|Networking Session Open
Professor Paul Stewart
|Scottish Dementia and experience of working with the SHARE project and involvement of people with long term conditions
|Bringing the patient voice into GlaxoSmithKline for educational, awareness and patient centred decisions within medicine development
|Patient involvement in clinical research and long term conditions -what can be achieved by working in partnership
Dr. J. Paul Schofield
|Working with a children and teenagers to shape research –reaping the benefits and the importance of education in this setting
|Building Research Partnerships- Shared learning for professionals and members of the public: supporting patient and public involvement (PPI) in health and social research
|Building Research Partnerships – Handout by Jack Nunn – download PDF here|
|EUPATI Training course: introduction to application process